Showing posts with label Recovery. Show all posts
Showing posts with label Recovery. Show all posts

Tuesday, January 5, 2010

I3 Detroit: Imagine, Innovate, and Inspire


3 Detroit is a collaborative environment for people to explore the balance between technology, art and culture. We feel the best way to create this environment is to bring like mind people together that share a common passion for technology, art and culture.
The community is run by it’s members through voting. All founding members have worked together to create a set of by-laws that all members and non-members are required to follow. The goal is to provide a safe and fun community environment.
We hope to continue to become a community resource by hosting various classes including but not limited to electronics, programming, crafts, Photography, cooking and all other skills that members or others are willing to share. We want to create an environment that promotes learning in a fun non-traditional format.



Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/

Monday, January 4, 2010

Mental health in background of upcoming political campaigns

Political candidates are no longer ducking mental health issues as if they disqualified them from office. In Portland, Oregon, a co-founder of Mental Health Association is entering the city council race. And in Minn., the Star Tribune reports the Democratic candidate for governor, Mark Dayton, acknowledged a history of depression. They join a handful of other politicians who have stepped forward, despite stigma and discrimination, to acknowledge their own treatment or that of a relative.

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/

"This Emotional Life" Series

Thanks and a Hat Tip to Stephen Bateson....


This 3-part series represents what television does best. It opens a window into real lives, exploring ways to improve our social relationships, cope with emotional issues, and become more positive, resilient individuals. Hosted by Daniel Gilbert, Harvard psychologist and best-selling author of Stumbling on Happiness.


http://www.pbs.org/thisemotionallife/home

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/

A Moving Forward

by Gerald Butler



1/3/2010
        Remodeling is just about complete at the CHARGE space at the Russell site and we will begin operations from there by the first of the year. The list of consumer volunteers has grown to about 30 and we will begin to prepare for a grand opening. We have been using this down time to expand our community out reach and collaborations. The ‘Visions of Recovery Community Gospel Choir’ has been particularly busy since we played the Fort Street Church Open House. Pattie Charleston and I took the choir to the ‘Noel Night’ festivities in Downtown Detroit to see the Rackham Symphony Choir show and meet some of the choir members. They are as just excited as we about our collaboration for the concert for in March.
     At least one of the Rackham Choir members will be working with the Visions Choir between now and the date of the  ‘Concert for the Homeless’. CHARGE is proud to be invited to provide the entertainment for the ‘After Glow’ of this event. The Visions Choir united with Reverend Riggins and the Detroit Rescue Mission for ‘Gospel Night’ at the Russell Center. They also sang at the Detroit Central City Dual Recovery Christmas party where they encouraged consumers to find the rare leaders in the system willing to help us take charge of our lives. Personally, I consider myself lucky because I had positive leaders in my life since the beginning of my recovery journey.
Whether done consciously or unconsciously, providers often set up boundaries that distinguish the consumer from the provider. (Michigan Department of Community Health ‘Issue Paper’ 2009)
        Many providers tend to think of us in this manner, “Look at all the wonderful things I am doing for MY consumers”. Those who distinguish us in this manner are well intentioned. However, just as a loved one can enable another’s addiction, when (even unconsciously) consumers are perceived as incapable, that is how we are treated. This treatment can cause folks to lower their faith in the system and trust in their own ability to take charge of their recovery. A parent who runs alongside a child learning to ride a two-wheeler has to let the child take over at some point. The system of treatment in the U. S. has grown to the point where it should be encouraging and supporting consumer-run, recovery-centered programming. To date, efforts to have a genuinely consumer run entity working within the system have either been unsuccessful or at best, resulted in strained relationships. For the partnership to flourish both sides must have an appreciation and respect for one another. Hopefully, we can make it work with Adult Well Being.    
        I realize that the system does not recognize me by my accomplishments but merely by my illness. So I figured I’d strive to be the best possible recovering consumer. The first thing I had to do was to learn to listen wholeheartedly to what other consumers were saying. Next, I had to confront stigma I had regarding others and myself. I began to view each consumer by their potential, not by their illness. There are literally thousands of consumers who could benefit significantly from being in an uncomplicated, transparent (it is what it is) safe environment run by Certified Peers. Unless and until this occurs no one, not even consumers, will ever know our true capabilities and talents.        
 Gerald Butler 



Norman DeLisle, MDRC
"With Liberty and Access for All!
GoogleVoice: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/

Saturday, November 8, 2008

Human Rights Alert: Involuntary Electroshock

MindFreedom International -- 7 November 2008
Human Rights Alert: Involuntary Electroshock
http://www.mindfreedom.org - please forward

   If it's Wednesday, then Ray Sandford is Getting
   Escorted from His Home for Another Forced Electroshock

   Minnesota Resident Gets Involuntary Electroconvulsive
   Therapy (ECT) On A Weekly Ongoing *Outpatient* Basis

   ACTION: How You Can Easily E-mail Minnesota Governor

   by David W. Oaks, Director, MindFreedom International

The past Wednesday morning after the historic USA election what were
you doing?

I know what Ray Sandford, 54, was doing.

Each and every Wednesday, early in the morning, staff shows up at
Ray's sheltered living home called Victory House in Columbia Heights,
Minnesota, adjacent to Minneapolis.

Staff escorts Ray the 15 miles to Mercy Hospital.

There, Ray is given another of his weekly electroconvulsive therapy
(ECT) treatments, also known as electroshock. All against his will.
On an outpatient basis.

And it's been going on for months.

Ray says the weekly forced electroshocks are "scary as hell." He
absolutely opposes having the procedure. He says it's causing poor
memory for names such as of friends and his favorite niece. "What am
I supposed to do, run away?" Instead, Ray phoned his local library's
reference desk to ask about human rights groups, and the librarian
referred him to MindFreedom International.

Ray called me at our office here at MindFreedom International about
two weeks ago. At first I wasn't sure I believed him.

Of course, MindFreedom International has documented proven cases of
electroshock against the expressed wishes of the subject all over the
world, including in the USA. MindFreedom succeeded in having the
United Nations World Health Organization call in writing for a global
ban on all involuntary electroshock.

But this is the first time I've been on the phone with someone
getting court-ordered forced shock while living out in the community,
on an outpatient basis.

This is the ultimate double whammy.

I confirmed Ray's story by calling two staff at Victory House as well
as his court-appointed conservator, Tonya Wilhelm of Luthern Support
Services of Minnesota.

Ms. Wilhelm said, "We are following the letter of the law." She said
the State of Minnesota had secured a variety of court orders that
require Ray to have forced electroshock against his expressed wishes.
Ms. Wilehlm says it's all legal and she can't do anything about it.

Krista Erickson, chair of MindFreedom's Shield Campaign, sees it
differently. "This is terrible. This is a serious human rights
violation that should stop. I hope MindFreedom members and supporters
speak out. Even if Minnesota is following the letter of the current
law, the law ought to be changed. And Ray has not had the legal power
to appeal to higher courts."

I pointed out to Conservator Wilhelm that the public -- when they
find out about forced electroshock -- is passionately opposed to
their taxpayer money being used to force such brutality on citizens.
Ms. Wilhelm did let slip that what is happening to Ray -- involuntary
outpatient electroshock -- is not that uncommon in Minnesota.

But when Ms. Wilhelm found out we at MindFreedom are issuing one of
our public human rights alert to you and others, at Ray's repeated
request, she said something chilling.

Ms. Wilhelm claimed she had a legal right to stop MindFreedom!

Ms. Wilhelm told me, "Only I can give you permission legally to say
anything publicly about this."

I pointed out we are not a medical facility, and that if she falsely
claims we're doing anything illegal then this is defamation. Which
really is illegal.

Ms. Wilhelm laughed loudly in the phone, said "let our lawyers talk,"
and hung up on me. I hope she hung up to read the First Amendment.

Let's disobey Ms. Wilhelm!

Spread Ray's alert far and wide! Speak out against this electrical
torture, now!

Because... Remember... While the world marvels at the power of USA
democracy:

If it's Wednesday morning, then Ray Sandford is being led from his
home -- which is supposed to be his castle -- to get another weekly
forced procedure that can cause brain damage and wipe out memories.

- David W. Oaks, Director, MindFreedom International

~~~~~~~~~~~~

Mind your freedom. Disobey Ray's conservator now!

Forward this alert to all appropriate places on and off the Internet,
IMMEDIATELY!

And take the *below* actions. Thank you. Ray and I are counting on you!

~~~~~~~~~~~~

     * * * ACTION * * * ACTION * * * ACTION * * *

You can do this in a moment. It's free! DO IT NOW!

E-mail your firm but polite message to Minnesota Governor Tim Pawlenty.

SAMPLE MESSAGE -- your own words are best:

"Investigate the weekly involuntary outpatient electroshock of Ray
Sandford. Every Wednesday morning, MindFreedom says Ray is brought
from Victory House in Columbia Heights, Minnesota to Mercy Hospital
for forced electroshock. Stop all forced electroshock today! Taxpayer
money should not fund torture!" [Your name/contact.]

E-mail address: tim.pawlenty@state.mn.us

Or use this handy web form:

http://www.governor.state.mn.us/contacts/Forms/askthegovernor/index.htm

or this link:

http://tinyurl.com/mn-governor

~~~~~~~~~~~~

     * * * ADDITIONAL ACTIONS TO SUPPORT RAY! * * *

1) E-mail a complaint to Luthern Social Services of Minnesota (LSSMN)
about Ray's conservator.

Sample message:

"Investigate allegations that LSSMN employee Tonya Wilhelm tried to
stop a public human rights alert by MindFreedom International about
her client, Ray Sandford, who is receiving weekly outpatient
involuntary electroshock at Mercy Hospital in Minneapolis. If
verified, please reprimand, fire and replace Ms. Wilhelm, and please
place this in her permanent personnel record. Please support human
rights." [Your name/contact.]

Use LSSMN's web page:

http://www.lssmn2.org/contact_lss.htm

Or phone Luthern Social Services at: (218) 726-4888

You can copy your message to headquarters of The Evangelical Lutheran
Church in America (ELCA):

info@elca.org

 From ELCA's web site about their church: "It’s a story of a powerful
and patient God who has boundless love for all people of the world,
who brings justice for the oppressed."

More at:

http://www.elca.org/What-We-Believe.aspx

2) E-mail a complaint to Allina Hospital and Clinics, owner of Mercy
Hospital.

Sample message:

"Investigate allegations that your patient Ray Sandford of Victory
House is receiving involuntary outpatient electroconvulsive therapy
against his will each Wednesday at Mercy Hospital."

Use this web page:

http://www.allina.com/ahs/help.nsf/page/contact

Or phone: (763) 236-6000

3) Ray is open to visitors and supportive postal mail:

Ray Sandford
Victory House
4427 Monroe St.
Columbia Heights, MN 55421-2880 USA

MindFreedom will print out and mail to Ray some of your e-mail
messages to the Governor and others, and put some on the web. E-mail
a copy of what you write to news@mindfreedom.org.

~~~~~~~~~~~~

AND ONE MORE THING!

Say "no" to mental health system censorship!

Disobey Ray's conservator now!

PLEASE forward this public human alert to all appropriate places on
and off the Internet, IMMEDIATELY! Thank you!

~~~~~~~~~~~~

More info:

See the latest news and updates at the MindFreedom website at:

http://www.mindfreedom.org

Plenty of data on electroshock on the MindFreedom web site, click here:

http://tinyurl.com/zapback

Watch upcoming blog entries by David W. Oaks, MFI Director:

http://www.mindfreedom.org/mfi-blog

~~~~~~~~~~~~

NONVIOLENTLY ZAP BACK against forced electroshock!

NOW are you ready for nonviolent revolution in mental health?

Join, renew, and support MindFreedom TODAY!

Be part of the MFI Fall 2008 Support Drive, click here:

http://www.mindfreedom.org/join-donate


Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/

Sunday, October 5, 2008

Evalutating Programs to Improve Social Acceptance of People with Mental health Issues

Evaluating Programs to Improve Social Acceptance
of People with Mental Health Issues


SAMHSA’s Resource Center to Promote Acceptance, Dignity and Social Inclusion Associated with Mental Health invites you to register now for a free teleconference training titled, "Evaluating Programs to Improve Social Acceptance of People with Mental Health Issues."

Date: Tuesday, October 21, 2008
Time: 2:00 PM - 3:30 PM (Eastern Time)

To register for this training teleconference, please click here for our registration page.
Please pass this invitation along to interested friends and colleagues. Please note: Registration for this teleconference will close at 5:00 p.m., Eastern Time, on Friday, October 17, 2008.
We will email the telephone number for the training teleconference to all registered participants on Monday, October 20, 2008.

Training Summary

Most programs to promote social acceptance and address public perceptions of people with mental health problems are not evaluated for two primary reasons; (1) there is a knowledge gap regarding how to develop and conduct evaluation efforts and (2) there are a lack of resources (both human and financial) available to most groups and organizations who run stigma reduction activities and programs.
This training will:
  • Demonstrate how to evaluate programs, and provide opportunities for linking with individuals who have conducted evaluations of similar efforts.
  • Explain the types of things to be considered when developing, planning, and conducting evaluation activities.
  • Explain how you may work with evaluators for little or no cost.
  • Provide information on collaborating with various universities for help with evaluation design issues that will help generate better results.

Send in Your Questions

We invite you to send in your questions related to evaluating programs to improve social acceptance of people with mental health issues in advance of the teleconference. Speakers will answer as many questions as possible during the teleconference. Please send your questions by e-mail topromoteacceptance@samhsa.hhs.gov.
Please note that sending a question does not guarantee its inclusion in the teleconference. We will provide the speakers' contact information so that you may pursue your answer after the call. If you provide your name and organization at the time you ask your question, we may use it during the call. Anonymous questions also can be submitted.

Training Sponsor

This teleconference is sponsored by SAMHSA's Resource Center to Promote Acceptance, Dignity and Social Inclusion Associated with Mental Health (ADS Center), a project of the Center for Mental Health Services (CMHS) of the Substance Abuse and Mental Health Services Administration (SAMHSA), U.S. Department of Health and Human Services. The session is free to all participants.


Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

Free Audio-Net Training on Self-Employment


CMHS CONSUMER AFFAIRS E-NEWS 3 OCTOBER 2008
_________________________________________________________________


You are cordially invited to





TOPIC:      Self-Employment: One Road to Recovery,
An Avenue for Transformation

DATE:        Tuesday, 21 October 2008

TIME:         10:00 AM - 11:30 AM (EDT)
 




Learn strategies to support self-employment for mental health consumers
and why entrepreneurship makes sense for some people and their recovery

The training will address the following:
  • Demonstrating how entrepreneurship is related to recovery and the supports needed for successful consumer entrepreneurship,
  • Providing an overview of successful program for emerging entrepreneurs, and 
  • Using Supported Employment to help consumers start their own businesses.

Presenters
  • Mary Blake, SAMHSA/CMHS
  • Morris Tranen, Reaching Independence Through Self-Employment (RISE, Inc.)
  • Jeanne Michelle (entrepreneur), Range of Emotion
  • Robert Burns, Division of Rehabilitation Services, Maryland State Department of Education

To register for this event:
  • Choose “”Web RSVP” under “Participant Join” and enter the conference number and passcode:
CONFERENCE NUMBER: 1095798
PASSCODE: 1673322
  • Provide your information for the event leader and then click submit.


Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

Tuesday, September 30, 2008

Depression and Bipolar Support Alliance

from DBSA: 



Educational Programs & Events


DBSA hosts a variety of educational and fundraising events throughout the year. We encourage you to check our events calendar often to find out upcoming opportunities to participate! 

View a full range of events by visiting:

 DBSA Events Calendar (DBSA National hosted events)
 Events Outside of DBSA (Events hosted by organizations outside of DBSA)
 DBSA Local Chapters (Check the DBSA Chapter pages to find regional events in your area, like Facing Us Events.)
DBSA National Confernce
September 10-14, 2008
Tap into the "Power of Peers" this September as DBSA presents a conference of compelling educational workshops, pre- and post-conference institutes and an unprecedented lineup of renowned keynote speakers:
Peer Specialist CE
Live Webinar
October 14, 2008
Moving from Peer to Peer Provider
Presenters:
Lisa C. Goodale, ACSW, LSW and Terry O'Connor




Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

NAMI Michigan NAMIWALK

from WHERE'S MARTY RECOVERY TOUR: 


Today I took the Silverwing to the NAMI Michigan NAMIWALK on Belle Isle. It was a great walk. There were lots of people there. I couldn't walk today as I have broken a bone in my foot so my ability to stand, much less walk is limited.

What I saw was many people walking, talking and having a great time. People with a mental illness, people who had family members who have a mental illness, friends of people who have a mental illness. There are more families involved now, I mean the ones with young kids. For a long, long time it always seemed to me that the people with an illness were around; sometimes they had parents and sometimes they didn't.




But now, there are families with younger kids involved. I am so glad that I have grandkids. (See grandkids to the left; Can't you just feel the love?) They would have been there today, but the truck was broken. 

I would love to tell you that my meds changed everything, but what made the biggest change for me was the support that I got from people and for me, many of the people who did the supporting were NAMI members (both family and consumer members; I always get asked.) And yes, I am often a fan of NAMI Michigan. We don't always agree, but they are a major reason I am well. Of course they are also a major reason that I have learned to become a great advocate.



Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

Friday, September 26, 2008

Public Comment on Use of Block Grant Funding

Public Comment Request


Public comment is requested on the Michigan Department of Community Health’s annual application for Community Mental Health Block Grant funding. The application is for funding of $13,088,713 for the fiscal year that begins October 1, 2008. These annual funds are used to improve public community-based mental health services for adults who have serious mental illness and for children who have serious emotional disturbance.

The plan can be accessed at the following site: http://www.michigan.gov/mdch/0,1607,7-132-2941_4868_4902-125922--,00.html. There is a link at the site that may be used to submit comments. Comment may also be made in person at meetings of the Advisory Council on Mental Illness.

If you would like a copy of the plan mailed to you, or would like information on the Advisory Council meetings, please call Karen Cashen at (517) 335-5934 or e-mail her at cashenk@michigan.gov



Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

Friday, September 19, 2008

The Power of Peers

I returned this week from the national conference of the Depression and Bipolar Support Alliance, held in Norfolk, Virginia. The theme of the meeting was "The Power of Peers," and the lectures I attended, the response to the one I presented, and the conversations I had with fellow attendees all underlined for me the importance of this concept. Many at the conference were leaders of local DBSA chapters around the United States; some were peer counselors, peer trainers or peer advocates for mental health parity. Most were also living with depression or bipolar disorder themselves, or had a close family member with one of these illnesses. More...

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

Sunday, September 14, 2008

The 10 by 10 campaign


from Kathryn Wyeth

The 10 by 10 Campaign Update
Volume 4
August/September 2008
Center for Mental Health Services (CMHS), Substance Abuse and Mental
Health Services Administration (SAMHSA)
Greetings!  This is the fourth update on the 10 by 10 Campaign to promote wellness for people with mental illnesses and reduce early mortality by 10 years over the next 10 year time period.  Please forward to anyone who might be interested. 
In this issue:
      New Grant Aims to Overcome Obesity in People with Serious Mental Illness
      Working Toward Wellness
      CDC National Health Interview Survey
      National Center on Physical Activity and Disability
      SAMHSA Smoke-Free Conference Policy
      Quote on Wellness
      Disease Prevention Called a Better Bet
      Consumer Affairs Enews
      Physical Activity Guidelines Advisory Committee Report – Now Available!
A National Call to Action for Wellness of People with Mental Illnesses
        The early mortality rates of people with serious mental illness – up to 25 years life lost – have recently received much-needed attention. This disparity in life expectancy is unacceptable.  People with serious mental illnesses deserve to live as long and healthy lives as other Americans.
        As the National Association of State Mental Health Program Directors (NASMHPD) Medical Director’s Council recently reported the “increased morbidity and mortality are largely due to treatable medical conditions that are caused by modifiable risk factors such as smoking, obesity, substance abuse, and inadequate access to medical care.”
The Pledge for Wellness
        We envision a future in which people with mental illness pursue optimal health, happiness, recovery, and a full and satisfying life in the community via access to a range of effective services, supports, and resources.
        We pledge to promote wellness for people with mental illness by taking action to prevent and reduce early mortality by 10 years over the next 10 year time period. Over 50 organizations have signed onto the pledge. Sing up now by email: paolo.delvecchio@samhsa.hhs.gov
New Grant Aims to Overcome Obesity in People with Serious Mental Illness
A new grant funded by NIMH will test the effectiveness of a promising intervention designed to help people with serious mental illness (SMI) who are overweight or obese lose weight and keep it off.
Obesity is common among people with SMI and contributes to a higher risk for cardiovascular disease and a shortened life expectancy. Yet, typical weight loss programs are frequently less effective for people with SMI. Gail Daumit, M.D., M.H.S., of Johns Hopkins University, and colleagues designed a comprehensive behavioral weight loss program tailored to the specific needs of people with SMI.
The program will be tested in a randomized clinical trial—named the ACHIEVE trial—with 320 participants in up to ten psychiatric rehabilitation centers around Maryland. Participants will be randomized to either the intervention or to a comparison group who will receive “usual care” that does not include the tailored components.
Participants in the intervention group will receive six months of intensive group and individual weight loss management and counseling sessions that complement their mental health treatments, plus exercise classes. During a 12-month follow-up maintenance period, the intensity and frequency of sessions will gradually taper off. The researchers will measure the participants’ change in weight and other health-related factors over the 18-month period. If successful, the intervention could become the basis for a model program to help people with SMI conquer obesity.
For more information go to:
Working Toward Wellness
        The Depression and Bipolar Support Alliance’s booklet can help you look at your life style choices, track your progress, recognize the patterns relating to your mental health. Through examples it guides you in areas like symptoms, mood triggers, peer support, healthy lifestyle, talking to health care providers and others about your illness, crisis planning, and helping you to put together a wellness plan that fits you. 
CDC National Health Interview Survey
        The issue of health and well-being of people with disabilities is receiving recognition as a national and international priority, as several recent initiatives indicate. The accomplishment of these initiatives requires high quality data to uncover disparities, plan programs, and monitor and evaluate progress.
3% of the population reported emotional difficulties.  Approximately one-half of adults with emotional difficulties were under 45 years of age.  Of those who were aged 65 years or over with any basic actions difficulty, only 13% reported emotional difficulties.
Women were also overrepresented in the population with emotional difficulty (64%), and emotional difficulty is not as likely to be associated with increasing age as other disabilities.
Approximately 52% of those with emotional difficulty reported fair or poor health which is of interest because those with emotional difficulty are more likely to be 18–44 years of age, and this age group generally reports better health.
About one-third of adults with emotional difficulty were obese, compared with less than 20% of adults with no disability.
People with emotional difficulties were by far the most likely to smoke (43%) compared with those who had other types of difficulties.
Among adults with specific types of disability, current heavy drinking rates were highest for adults with the least severe difficulty in movement (10%) and with emotional difficulty (8%),  Rates of reporting of 5 or more drinks on 21 or more days in the past year were highest among people with emotional difficulty (18%).
Adults with emotional difficulty, who tend to be younger than those with other types of difficulties, are more likely to lack a usual source of healthcare (18%)  People with emotional difficulty were more likely than those with other types of disability to report aclinic or health center as their source of care (24%) – in contrast to private doctors and other settings.
People with emotional difficulties most often reported being uninsured (28%).
Among men and women 50 years of age and over with various types of basic actions difficulties, those with emotional difficultywere less likely to receive influenza vaccination than those with movement difficulty, seeing or hearing difficulty, or cognitive difficulty.
National Center on Physical Activity and Disability
        The mission of the National Center on Physical Activity and Disability (NCPAD), supported by the Centers for Disease Control and Prevention, is to promote substantial health benefits that can be gained from participating in regular physical activity. The slogan of NCPAD is Exercise is for EVERY body, and every person can gain some health benefit from being more physically active.  NCPAD is an information center concerned with physical activity and disability. 
For more information, please see: http://www.ncpad.org/
SAMHSA Smoke-Free Conference Policy
Effective August 15, 2008, SAMHSA has adopted a smoke-free conference policy.
Policy Summary
        SAMHSA’s smoke-free Conference Policy requires that all meetings and conferences (20 or more participants) sponsored by SAMHSA or organized by a SAMHSA employee(s) be held in a town, city, county, or state that is smoke-free—this includes SAMHSA conferences done through a contract.
SAMHSA encourages adherence to Smoke-Free Conference Policy for conferences for which SAMHSA is a co-sponsor.
        An approved conference facility is in a locality that is covered by a state or local law that requires smoke-free enclosed workplaces and public places including restaurants and meeting facilities.
Quote on Wellness
Physical activity is vital to promote and maintain health, but it's easy for many of us to overlook. The Physical Activity Guidelines (see last page) will underscore the importance of physical activity to America's health and assist on the journey to a healthier life. Good health—wellness—doesn’t just happen. Wellness has to be a habit."
Secretary Michael O. Leavitt
U.S. Department of Health and Human Services
Disease Prevention Called a Better Bet
Wellness Programs Yield Greater Returns, Report Finds
By Megan Greenwell, Washington Post
An ounce of prevention in community health programs could save states hundreds of millions in health-care costs, a new study has found. The report from the Trust for America's Health, a nonprofit health advocacy group, found that programs encouraging physical activity, healthy eating and no smoking were a better investment than those concentrating primarily on treatment.
The results are laid out in a state-by-state breakdown. The District, the researchers found, would save $9.90 for every dollar invested, or $57 million over five years. Maryland would save $6 for every dollar, for $332 million over five years, and Virginia would save $385 million -- $5.20 for every dollar spent.
The researchers arrived at their numbers by calculating potential decreases in several chronic diseases based on a $10 investment per person. They found that community health programs could reduce rates of diabetes and high blood pressure by 5 percent within two years and reduce the incidence of some forms of cancer and arthritis within 10 to 20 years.
The report, called Prevention for a Healthier America, emphasizes a major role for nonprofit community health programs such as the YMCA. It also advocates that state and local governments help create healthier communities. Researchers endorsed such initiatives as increased tobacco taxes, smoke-free laws, nutrition labeling on restaurant menus and maintaining sidewalks as low-cost ways to encourage healthy living.
The researchers commended several innovative community health initiatives, including a children's program in Dallas that has led to healthier eating and increased physical activity among youngsters and the District's new Child Health Action Plan, which targets some of the city's worst health problems affecting youth. However, the researchers found that many such programs lack funding, a chronic problem for many preventive health initiatives.
Consumer Affairs Enews
The CMHS Office of the Associate Director for Consumer Affairs has established a Listserv to support the participation of mental health consumers in all aspects of CMHS policy, planning, and grant activities. The E-News provides useful news and information from the Substance Abuse and Mental Health Services Administration including CMHS as well as other Federal agencies.  This includes information on trainings, grants, publications, campaigns, programs, and statistics and data reports related to mental health.
To join the Consumer Affairs Listserv go to: http://mentalhealth.samhsa.gov/listserv/
Physical Activity Guidelines Advisory Committee Report – Now Available!
        On October 26, 2006, Health and Human Services Secretary Mike Leavitt announced the development of comprehensive guidelines to help Americans fit physical activity into their lives. The Physical Activity Guidelines Advisory Committee Report, 2008 is now available and presents and summarizes the Advisory Committee's review of science relating physical activity to a variety of health outcomes, also addressing particular subgroups of the population such as children and youth, pregnant and postpartum women, persons with disabilities, and individuals with some chronic conditions.
You can access the Report (and provide comment) by going to

For more information on CMHS Wellness Efforts, please contact:
Paolo del Vecchio
Associate Director for Consumer Affairs
CMHS, SAMHSA
1 Choke Cherry Rd. Rockville, MD 20857
Phone: (240) 276-1946
Fax: (240) 276-1340
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Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

Friday, September 12, 2008

The Center of Recovery & the Arts

from Gerald Butler:


The same programs available to us here in Michigan are the same across the nation. What makes Michigan’s recovery efforts so successful is this: no matter the quality of a program, if consumers do not actively participate in our own recovery process, we do not do well. The will to participate in the process lies in a basic, deep-seated belief that our recovery is possible. We needed leaders who had the same belief as ours. Two things I know for a fact are 1) I will never understand Algebra 2) Unless a person has walked in our shoes, they will never know the high value we place on our recovery.
At the base of Michigan’s advances in this field are people who are totally committed to systematic recovery. They have laughed with us, cried with us, broke bread at our tables, they have pushed us and pulled us and did whatever was necessary to assure doors were open. I feel I have a duty to pass that hope and trust on to as many of my brothers and sisters in recovery as possible. Being a musician it was natural that I chose music as a method of communicating the message, so I started the ‘Recovery Band’. Telling our stories artistically has had a profound effect on my recovery and those who work with us. I realize there is a goldmine of healing in the relationship between the arts and a healthy recovery.
These days one does not have to look far to find a support group. In my work with the band I am finding people who are more than Bi-Polar, more than severely depressed, many of these people are artists, poets, musicians, and writers. Support groups are extremely necessary and help us cope with our disease. Part of our contribution to system transformation is to become as independent as possible. Self-esteem and pride are vital components of independence. After treatment and above support systems, many of us must find who we really are deep down. We must then focus on two things 1) concentrate on and improve our positive attributes, 2) continue to pass the message of hope on to others. Thanks to Southwest Counseling we will soon have a program dedicated to these ideals.
By employing Peer Support as it’s base, The Center of Recovery & the Arts shall provide a recovery enhanced environment where artists of all genre’ can feel safe and comfortable enough to communicate their recovery artistically. Wanting to help in anyway possible spread the message of recovery; the members of the ‘Recovery Band’ shall be actively involved in the daily concerns of the center. We have learned how to put Peer Support into practice and we want to share our experiences. The center is in consultation with Yale University’s Dr. Priscilla Ridgeway (Pathways to Recovery). An artist in her own right, Dr. Ridgeway has begun similar programs and is willing to show us what she has learned. Her only demand was that our intentions be solely for and about consumer recovery.
Our dream is to one day be a valid enough program that the Michigan Recovery Council would advise us and we would provide the council with reports. Thus assuring the consumers we work with get the absolute utmost care and attention. Also, since different cultures have diverse ways of expressing themselves artistically, we hope to be able to learn and share by exhibiting art and music from consumers of other cultures I feel all cultures have certain valuable tools to contribute to the treatment and recovery process and everyone benefits when ideas are exchanged.
We have found a place where we can hone our skills before a live audience. Mexicantown’s Cafe Con Leche is a coffee the sponsors Poetry & Music Night. This is a night of folks sharing music, stories, journals, and poetry in a warm and welcoming atmosphere. The Center also been in contact with local professional musicians and artists willing to volunteer their time and do workshops on such varied topics as, playing the blues, financial management, promotion, mixing colors, telling your story effectively. Plus a whole lot more!
Change is inevitable and whenever it is economic consumers pay by losing vital programs. What is and has been needed are leaders who can adapt to change while maintaining a high- level of consumer care. Since consumer directed programs are a vital part of transforming the system of treatment and recovery, we thank ‘Southwest Counseling’ for providing us this opportunity to demonstrate our capabilities and talents. We will be announcing the opening of the center soon.


Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

VIDEO: Idlewild play at Scottish Mental Health Arts and Film Fest

from The Herald

The Scottish Mental Health Arts and Film Festival, now the largest of its kind in the world, announced a programme of over 100 events yesterday.

Scottish music acts including Idlewild, King Creosote, and Sons and Daughters are part of the line-up, alongside film screenings, visual art, theatre and drama events.

There will also be a new two-day literary festival featuring Scottish writers Sheila Puri and Leela Soma, and Scottish poet and playwright Liz Lochead.

The festival, now in its second year, will run from October 1-19 and take in major arts and community venues across Scotland.


Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

Wednesday, September 10, 2008

On Being A ‘Difficult’ Patient

A COLLEAGUE RECENTLY introduced me to a young physician, noting that her research interest was difficult patients. "Really," I responded. "I’m a difficult patient, and it’s served me well." I assumed that she considered being a difficult patient a good thing, but her pained expression suggested otherwise. We shared an awkward moment before parting, and I walked away considering the plight of the "difficult" patient.

In the clinical world, the term difficult is applied to a variety of patients: the noncompliant; the rude, abusive, and manipulative; the malingering; the mentally ill; the skeptical. In my case, I too frequently challenged my doctors with questions and too often chose a treatment that differed from what they’d recommended. I consider myself to be an assertive patient, but it was clear on many occasions that some providers thought I deserved the "difficult" label.

How did I earn this distinction? Surely some of it was genetic predisposition; I was born with a feisty personality that compensates for my diminutive stature. But mostly it was born of necessity, a survival instinct that involved both fight and flight.


Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

Monday, July 7, 2008

Dark night of the soul

On occasion I get some very moving correspondence from people from all walks of life, from all over the world about my videos and writings.
This post is more about the specifics of processing yourself with meditation. I try to answer questions as honestly as I can and shed some light on the phenomena of experiencing regressions, worsening and mental instability caused by meditation practice.
A recent correspondent sent me substantial background story about their mental health situation and the problems they were facing daily. This person found me from my youtube vids and I assume they know about my recovery strategies because this person wanted to know more about it and what to expect.


Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/

Saturday, July 5, 2008

Discover and Recover

Its description -  
International, non-profit, community based organization founded in 1937 by the late Neuropsychiatrist Abraham A. Low, MD.
Its mission -
To provide an effective, compassionate path to self-managed recovery from mental illness, behavioral disorders and chronic stress
 Its meetings  -
Peer-led weekly group meetings offer a system of self-help techniques which members learn and then practice in their daily life.
The techniques demonstrated at the weekly meetings are knows as the Recovery ‘Method’.
Information from contact with the organization:
Recovery, Inc. does not push medication.  In fact, discussion about medicine, religion or politics is not allowed.
The meetings are at no-cost with a free-will offering to offset expenses.

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/
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Thursday, June 26, 2008

Peer Counseling, The Middle Days

I'm still digesting, so much.
I need to go through it all and shake it out, put it in order start to finish.
My life's been very heavy on the Stretch and light on the Stabilize in recent weeks.
Here's the next installment on the notes.



We got a guided tour of the Big Binder-- our full text for the week and a polar opposite in size to the little red book.

We also got a guide through the Mental Health system, its many acronyms, and the laws most relevant to us. I learned that our state law is the RCW Revised Code of Washington and that the commentary with all the specifics on how to make the RCW work is the WAC Washington Administrative Code, names and details I was horrified to realize I didn't know despite living here my whole adult life.

It slowly started to filter through to me how public-health oriented all this was, that my turf in the below-poverty arena-- Basic Health instead of Medicaid, minimum wage instead of SSI/Disability-- was too upscale for most of the programs and agencies. Which didn't offend me-- one has to start somewhere-- but I'm just flummoxed by the weeklong steady accumulation of evidence that the sharpest cutting edge of the whole mental health industry is the bottommost rung. So much so that one of our speakers who is in a position to know states with bald confidence that the mental health care available in Monroe State Prison is better treatment than at Washington State Hospital.

I don't really have a place to put that yet, mentally.

Whether you are on Medicaid or not you *have* to be treated for any life-threatening illness including severe mental illness.

For failures to give such treatment, nonconsenual treatment, breach of confidentiality, and other forms of abuse or neglect by mental health care providers,
tell these people:
King County Office of the Ombudsmen
Dave Black, Matthew Wilson, Rosea Adams
1-800-790-8049, 206-208-5329
ombuds.mhd@kingcounty.gov

The better part of the afternoon went to a remarkable woman who has been the parent of a consumer for years and has started using mental health services herself after the lateness crisis. Her focus with us was on honing the two unique kickass "power tools" of peer counselors:
sharing stories, and
spotting strengths.

On sharing stories: As I'd write later, I am a fact, not a theory. Right up to meeting a peer counselor, most consumers have gotten only opinions, predictions, theories about mental illness and recovery. The Peer Counselor is one living, breathing, truth of what recovery can look like. Sharing parts of our stories form a powerful reminder that what the consumer is going through now will, over the long run, just be one part of their story. My shorthand notes call this being a "Role Model for Hope and Wellness". Even beyond this, speaking to directly to someone who's actually had detailed similar experiences is huge for a consumer, because it may mark their first chance to feel understood.

Spotting strengths is where the experience of recovery really comes in. A peer counselor who has faced down existence as a battle, knows both how being mentally ill trashes one's perspective until one can't actually recognize one's one accomplishments and strengths and we also know how to spot, adapt, and harness those invisible strengths. You simply cannot train a mental health professional to do this with the acuity and understanding of a fellow consumer.

So we had exercises working on how much story told how was appropriate under different situations, because of course one never wants to go so far that the consumer feels overwhelmed rather than connected, and we had exercises on spotting strengths, which hurt like hell. Literally. Thought my hand was going to fall off from writing and did run out of paper on my sheet to note strengths as my partner told their story. Friggin' superhero, I am telling you. One of many among us, I later learned.

We started Day Two with collective definions of Hope and Empowerment. Here's a tip, if you ever want 24 people to define empowerment, don't ask them to define "empowerment". Ask them to define "to empower". Otherwise one ends up with a very muddled set of images, followed in our case, I'm sorry to say, by equally muddled exercises for the lack of a clear common understanding of what we were trying to do. Ultimately my touchstone became "empower is the true opposite of enable". The best anchor I walked away with was the simplest definition: to empower is to alert someone to the power they already have.

Norman DeLisle, MDRC
"With Liberty and Access for All!"
GrandCentral: 517-589-4081
MDRC Website: http://www.copower.org/
LTC Blog: http://ltcreform.blogspot.com/
Recovery: http://therecoveringlife.blogspot.com/
Change: http://prosynergypsc.blogspot.com/
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